AGAIN….I have been MIA…..when the fatigue is so overwhelming that I cannot blog, or post, then I know this body I inhabit is really fighting with me. These bodies are so absolutely amazing, even when they don’t want to cooperate. And yes, I do know ….IT COULD BE WORSE.~
Those are fighting words some days.
Back to the title of this post…..Fibromyalgia is often found in those of us that have and deal with Chronic HCV. Although I was diagnosed with Fibromyalgia in 1990 and the non-a/non-b virus wasn’t named HCV until 1991. Interesting.
http://rheumatology.oxfordjournals.org/cgi/content/abstract/36/9/981
http://archinte.ama-assn.org/cgi/content/abstract/157/21/2497
http://www.janis7hepc.com/Symptoms.htm
http://www.ncbi.nlm.nih.gov/sites/entrez?cmd=Retrieve&db=PubMed&list_uids=12946286&dopt=AbstractPlus
http://hcvadvocate.org/news/newsLetter/2006/advocate0706.html
I always like to give links to any & all info. Some of the abstracts listed here are older, yet they are still used.
Is there a link between the virus and this tissue disorder?
http://www.fmaware.org/site/PageServer
http://www.rheumatology.org/public/factsheets/fibromya_new.asp
I wrote a poem several years ago….Lizzie is a pregnant with twins elephant.
That is how I describe living with Fibromyalgia…it is like living under the belly of Lizzie. Not a great way to get through a day, then add more fatigue because of the HCV and Bone issues and……
Lyrica is a drug that has now been given to me. I have been on it 10 days. It has helped the Neuropathy in my feet. Today I have increased energy level. That is a plus.
Here’s hoping….I have read of others that have actually been helped by this drug…I even have a friend who is being treated and it is helping her. YEAAAAAAA!
Well for this afternoon I am encouraged and I hope you are too. May kindness be in your life.
the icarecafe would really like your help with a discussion on Fibromyalgia
As you many know the icarecafe has been set up to provide a space for patients, carers and their supporters online.
Some of the members have set up a discussion group on the subject of Fibromyagia. The group has asked lots of questions which are still in the process of being answered. So we thought it appropriate if we invited people from other Fibromyalgia discussion group and blogs to ask if they wished to participate.
To have a look at the discussions so far please have a look at
http://www.icarecafe.com/?page_id=1107&group_id=36
Please do feel free to join in the discussions and to post any information which might be of interest to our members.
If you have any questions please feel free to get in touch. I’m one of the moderators of the icarecafe and I can be contacted by sending and internal email to my profile.
Thanks very much in advance for your help!
Best wishes
Belinda Shale
Moderator – the icarecafe
http://www.icarecafe.com